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Rare Diseases Association performed at the Rafael Méndez de Lorca an information campaign (16/02/2010)

The delegation in Murcia of the Spanish Federation for Rare Diseases, has made this morning at the Hospital Rafael Méndez de Lorca is an information campaign to sensitize the public about the research needs of these diseases, which currently affects the national territory more than three million people in our community and about 85,000 people.

The genes' association D is the representation of ERDF in the region of Murcia, which is chaired by Juan Carrión, who commented that "our society is composed of parents, families and professionals from all fields seeking to create opportunities for exchange and coexistence between the victims and raise awareness about public health problem posed by rare diseases. "

For its part Antonia Lopez, mayor of the Municipality of Lorca Health stated that "the Consistory support you with everything you need to implement actions that impact on preventing social isolation in many cases suffering parents with children suffering from these diseases , acknowledging the enormous effort and sacrifice involved to work toward solutions. "

Note that a disease is said to be rare if it affects less than 1 in every 2,000 inhabitants, thus establishing that the 6 to 8% of the world population is affected by this type of illness.

Federer reach people with a very interesting marketing campaign where professional football player, Andres Iniesta (FC Barcelona and National Team), lends his image and support the role, contributing to public recognition of those affected

Source: Ayuntamiento de Lorca

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UNE-EN ISO 9001:2000 - ER-0131/2006 Región de Murcia
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